Yesterday, I also received 1 unit of platelets and 2 units of blood. I will be getting platelets again today and probably everyday for a while. I also started the IV Nutrition last night. It kinda takes the pressure off ... but pressure on my bladder is another story. All night long, I had to relieve that pressure every hour.
Also, they put me on Opium Tincture, yep, that's right Sunshine, Opium Tincture to stop they diarrhea. Unfortunately, you take this liquid by mouth and I've never, NEVER, NEVER, EVER tasted anything so vile in my life. Picture, if you will, a tall stack of burning tires. Now, picture it the next day, when it's just cool burnt tire liquid. OK, now drink it. So, I don't really want to continue with it but there are only a couple of other options and it's imperative that they bring the diarrhea to an end before "the engraftment". Because after that point, every symptom is suspect as GvHD (Graft vs Host Disease).
Next news item...the inevitable thinning of the mane. As you can probably see in the photo below, bandanas are the newest accessory in my wardrobe. All I can say is, I'm no Cue Ball but it's bailing, and fast. Besides that, Illana is thrilled that I'm finally covering my hair.
I just got out of the shower and I feel so much more refreshed. Unfortunately, what was a beautifully sunny day is becoming rather overcast.
I'd like you to meet my new MIMIs that Illana just brought me.
Hello there Diva Doll....
ReplyDeleteand after all this you are still smiling.......
You are the best!
Princess
You are so BEAUTIFUL! Seeing your newest picture made be smile SO big! Akiva just came in, only saw your picture, smiled at me and said "Leah's feeling much better!"
ReplyDeleteThat opium stuff sounds terrible. Too bad they can't somehow intervenously get that stuff into you. Thank you for letting us be with you every step of the way.
Akiva wants to know if Judy and Illana play cards while you sleep...
Love,
Susie
Hi Leah. Still davening for you (and will continue to do so) and made a mishabeirach again this AM in my shul.
ReplyDeleteThe opium your taking is vile stuff.Its actually camphorated tincture of opium (brand name paragorec) and is one of the oldest meds around. It will relieve your diarreah. It will also give you amazing dreams.
The TPN is good for you. Even if it sends you the the BR a lot, it will give you the nutrition to keep you strong.
As for the hair, you now look like my second daughter ( a breslover chosid) who shaves her head. Don't you know that snoods and tichels are in style.
Keep your chin up, keep positive and know that all of us out there are here for you.
E Horwitz
Fairfax, VA
Mommy u look so cute and comfy and pretty
ReplyDeleteI miss u much
i love u!
Opium what?? Okay whatever. I'm sorry that they have to give you something so vile tasting but I guess you have no choice.
ReplyDeleteYou look beautiful and like yourself with or without the bandana or scarf or whatever you choose to use to cover your heard. I'm so glad to see that you still have that smile on no matter what.
Please send my love again to your mom. Can't wait to bump into her again soon in Brach's.
Love ya, Shelly
Hey Leah... Moshe just sent me your blog. I wish you from my heart's heart a speedy recovery.... You are a brave, beautiful women.
ReplyDeleteHope to see you soon.
Love Chaya
Lil,
ReplyDeleteYou look much better. Your Mimis are so cool. Sorry I didnt read your blog because you wrote too much and I cant read that much even if it depended on seeing minnie mouse. I love you soo much anyway even if you write aton. But guess what "I switched classes!!!!" I am soo happy to see that you were happy and I like your bandana. Oh shoot g2g but I love you and miss you. tell shnarfti that I say hi:>
Love always
daweez
Hi DEAREST Leah!
ReplyDeleteWhat CHIZUK!
You are amazing you look great you look like you are getting stronger! I know its that smile of yours! Through bad tasting meds, TPN, hair loss, weakness and good old hope, YOU are an inspiration!
Keep up the good work!
With great admiration!!!
Tziril Yurman
Hi Leah and Judy from Yerushalayim,
ReplyDeleteWelcome to the head covering clan!you are such
a soldier the way you accept each and every challange, and smile and share it with us all.
Life is not about what happens to us, but about how we deal with what comes to us, and you surely
surpassed us all!!
May Hashem just continue giving you this strength,along with your entire fabulous family and send you a full Refuah Shleima very quickly.
Its actually 12:30 am here is Israel but i couldnt go to sleep with out wishing you all a very good and easy Shabbos.
Shabbat Shalom to you all.
Love
Zeldie
I must confess, even I don't think I would want that opium ......well, let me think about it a day or two. Are you sure you can't smoke it?? Can you ask?? Oh moonie...you just are amazing...still smiling and trying to make all of us who care and love you so...feel so much better. I can't begin to express just how much of an impact you have and continue to make on my life and I can't wait to sit on the beach with you....and tell you
ReplyDeleteHope tomorrow is a very sunny day.
Hi Leah,
ReplyDeleteIt's so great to see you smile!! You're giving us all such an education AND so much inspiration!
Laurie
Hi Leah
ReplyDeleteI am sorry to hear that you are not feeling so well. I just came back from seeing the dentist (David) and he had told me of your illness, Bonny and I wish you only the best. Reading your blogs I find you an inspiration. You are an amazing woman and a amazing friend.
May every morning find you a sunny day
Joe and Bonny Glavin
glad I have company, opium???
ReplyDeletepoppy???
whatever???
I say if its otc - out it goes
if its triplicate its a keeper.
hope your feeling good.
thanks to Limor i am no longer on NOvember 21st I actually got to right day.
now i have to redirect cindy & jack margaretten cuz i am sure i gave them your wrong address.
goodnight and love to judy.
g
Glad to see you're able to write again, I hope it means you're feeling better. We at Darchei have you in our thoughts and prayers very day, and wish you a speedy refuah shelaimah!, (and i do like the bandana look). Alvin and crew
ReplyDeleteJake, get ready....No worries, I'll treat you to a green bandana to match your eyes.
ReplyDeleteLeah Rivkah, you're an inspiration to us all. Hi Savti.
Love, Froggie
We just got back from a concert with Tina Turner at Nassau Coliseum. She was amazing, but not quite as amazing as you are. We truly admire your continued strength. You are always in our thoughts and prayers. Like the bandana and your beautiful smile!
ReplyDeleteWith everything you are going thru - you still look beautiful and have that shinning smile!!!!
ReplyDeleteWe should all learn from you! You are amazing!
xoxo Orna
Good Shabbos.
ReplyDeleteDear Leah
ReplyDeleteIt so great to see a smile on your face. I'm so happy you're feeling better.Keep up the good work. Peter and I have been praying for your speedy recovery.
Love, Gale and Peter