Well, Mom saw the doctor on Monday. Thank God she got a good report and the go-ahead for travel. Her car was picked up and Monday afternoon and she flew down to Ft. Lauderdale on Wednesday afternoon to spend her first night in her new apartment in Century Village in Deerfield Beach. I suspect it will take a few nights to get used to her new surroundings in order to get a good nights sleep. But she is surrounded by friends who really care about her and I know she'll be ok.
Other than that, everything is status quo. Tonight is New Years Eve and David and I are going to a party. Thank you Shana & David for inviting us. We're really looking forward to it.
I'm feeling well, thank God. Small rash on my hand, still. I'm going to see Dr. Schuster on Tuesday. I don't know whether or not he'll want to reduce my Prednisone yet. Maybe he'll want to wait for this rash to clear up. Either way, I just hope I don't have to INCREASE the dose. I'd really love to be finished with it. I know...Patience.
I want to wish you all a happy & healthy new year. Personally, this past one was kinda rough for me so I'm looking forward to good times, good health. Thank you all for keeping up with me on this sometimes bumpy ride and for your continued prayers and good wishes. Let's hope that this new year brings us and those we love all good things. Believe in Miracles!
Thursday, December 31, 2009
Monday, December 28, 2009
Finally Florida Bound!
Well, Mom got the go-ahead from her doctor this morning at her post-op follow-up visit. Her car will be shipped this afternoon and she is going to be flying down on Wednesday. I'm disappointed that our road trip has been cancelled but I understand how anxious she is to get down there. Hopefully, I'll go down and visit in a few weeks.
I've been doing pretty good. I still have a rash on my hands but other than that, it's ok. I've got another appointment to see Dr. Schuster on 1/5.
Thank God Mom had a good report and I'm feeling better and thank you all for your good wishes & prayers. Believe in Miracles!
I've been doing pretty good. I still have a rash on my hands but other than that, it's ok. I've got another appointment to see Dr. Schuster on 1/5.
Thank God Mom had a good report and I'm feeling better and thank you all for your good wishes & prayers. Believe in Miracles!
Tuesday, December 22, 2009
Signs of Improvement
The last couple of days have brought some signs of improvement. I am less tired, fewer aches, the rash on my hand seems to be letting up and my eyes aren't bothering me as much. Thank God, maybe the worst is over?
I've been getting these little clear fluid-filled blisters in my mouth after I eat. They usually last for about 1/2 hour to an hour and then they disappear. I went to show them to an oral surgeon yesterday and he thinks that they're just from clogged salivary ducts, maybe from trauma, and that they'll probably just go away. The only thing I don't understand is why I'm getting them all of the sudden and why they are appearing on both sides of my mouth -- sometimes the right, sometimes the left, sometimes both simulatneously and sometimes not at all. I'll keep an eye on it an if it doesn't go away, I'll let Dr. Schuster know about it.
Mom has been feeling better and stronger. She's got a follow-up with the surgeon on 12/4, but she's trying to get in to see him sooner. I've got my next appointment on 12/5. If all goes well, we're hoping to go to Florida on 12/10.
Illana is still having trouble with her shoulder but she's been seeing a new doctor and has had some relief. She'd been going for physical therapy but saw no improvement. Tomorrow, she starts seeing an occupational theraist who specialiizes in the upper extremeties. We're optimistic & praying for her.
Thank God David and the kids are doing alright. Rachel's "friend" is here from L.A. Jacob will be going up to Connecticut to visit his "friend" this weekend. I've got relatives from Israel staying here for a couple of weeks. It's all good.
Thanks for checking in and for all of your thoughts, prayers and good wishes. Believe in Miracles!
I've been getting these little clear fluid-filled blisters in my mouth after I eat. They usually last for about 1/2 hour to an hour and then they disappear. I went to show them to an oral surgeon yesterday and he thinks that they're just from clogged salivary ducts, maybe from trauma, and that they'll probably just go away. The only thing I don't understand is why I'm getting them all of the sudden and why they are appearing on both sides of my mouth -- sometimes the right, sometimes the left, sometimes both simulatneously and sometimes not at all. I'll keep an eye on it an if it doesn't go away, I'll let Dr. Schuster know about it.
Mom has been feeling better and stronger. She's got a follow-up with the surgeon on 12/4, but she's trying to get in to see him sooner. I've got my next appointment on 12/5. If all goes well, we're hoping to go to Florida on 12/10.
Illana is still having trouble with her shoulder but she's been seeing a new doctor and has had some relief. She'd been going for physical therapy but saw no improvement. Tomorrow, she starts seeing an occupational theraist who specialiizes in the upper extremeties. We're optimistic & praying for her.
Thank God David and the kids are doing alright. Rachel's "friend" is here from L.A. Jacob will be going up to Connecticut to visit his "friend" this weekend. I've got relatives from Israel staying here for a couple of weeks. It's all good.
Thanks for checking in and for all of your thoughts, prayers and good wishes. Believe in Miracles!
Thursday, December 17, 2009
Trying to De-Prednisone
Hi. I'm frustrated. I've been on Prednisone for months and months and we've been trying to wean me off. My first attempt was met with headaches, nausea and aches & pains. So we went back up on the dose and decided to try again in a little while.
The second attempt was met with really bad muscle and joint pain and fatigue and so we upped the dose and decided to try again in a little while.
Now we're trying again. I've got muscle and joint pain, though not as bad as last time, fatigue and I think I've got a rash on my hands and chest and neck. Also, my eyes, which have been so much better lately, have started bothering me again. I'm very eager to get off of the Prednisone but I just don't know how!
I'm not scheduled to see Dr. Schuster again for another three weeks. I guess I'm going to have to call him though to see if I should just "tough it out" or not. I'm leaning toward "toughing it out" as long as it doesn't pose any real danger.
I'm trying to be there for Mom but really all I want to do is stay in bed and watch old movies.
OK, so now I've vented a bit and you know what's going on. Will update again when there's news.
Thanks for being there. Believe in Miracles!
The second attempt was met with really bad muscle and joint pain and fatigue and so we upped the dose and decided to try again in a little while.
Now we're trying again. I've got muscle and joint pain, though not as bad as last time, fatigue and I think I've got a rash on my hands and chest and neck. Also, my eyes, which have been so much better lately, have started bothering me again. I'm very eager to get off of the Prednisone but I just don't know how!
I'm not scheduled to see Dr. Schuster again for another three weeks. I guess I'm going to have to call him though to see if I should just "tough it out" or not. I'm leaning toward "toughing it out" as long as it doesn't pose any real danger.
I'm trying to be there for Mom but really all I want to do is stay in bed and watch old movies.
OK, so now I've vented a bit and you know what's going on. Will update again when there's news.
Thanks for being there. Believe in Miracles!
Wednesday, December 16, 2009
Mom's surgery update
Mom underwent laproscopic surgery yesterday at Lenox Hill Hospital. She had her ovaries and fallopian tubes removed and a D&C. Thank God the pathology was benign. She was in and out on the same day and is recuperating at my house.
David's working too hard and is exhausted. I guess we've got to plan a trip away, somewhere warm and relaxing.
My nephew Justin in Florida and his wife Noke were blessed with a new baby boy last week. He was over 10 lbs and his name is Julian. Welcome, Julian!
The kids are finishing up their semesters at Queens College and are now doing their papers and studying for finals.
Illana has been suffering terribly. She had shoulder surgery over a month ago but is not only still in pain, but is in more pain than ever. She's been going to physical therapy which doesn't seem to be working and just started acupuncture. Hopefully, she'll get some relief. We'll be praying for her.
Happy Chanukah to my Jewish friends, Merry & meaningful Christmas to my Christian friends and all the best of the season to those who fall into other categories. Thank you so much for your prayers and good wishes. Believe in miracles!
David's working too hard and is exhausted. I guess we've got to plan a trip away, somewhere warm and relaxing.
My nephew Justin in Florida and his wife Noke were blessed with a new baby boy last week. He was over 10 lbs and his name is Julian. Welcome, Julian!
The kids are finishing up their semesters at Queens College and are now doing their papers and studying for finals.
Illana has been suffering terribly. She had shoulder surgery over a month ago but is not only still in pain, but is in more pain than ever. She's been going to physical therapy which doesn't seem to be working and just started acupuncture. Hopefully, she'll get some relief. We'll be praying for her.
Happy Chanukah to my Jewish friends, Merry & meaningful Christmas to my Christian friends and all the best of the season to those who fall into other categories. Thank you so much for your prayers and good wishes. Believe in miracles!
Sunday, December 06, 2009
Sunday Update
As long as I'm in bed with a nasty cold, I'll update you on the situation with Mom.
She went for the sonogram and histogram. The sonogram went fine but the histogram turned out to be quite a fiasco. They tried to do it and she was in excruciating pain and they weren't successful. They told her that they'd try again, and she just said "no way" and got up and left.
The gynecologist oncologist had gotten in touch with her and said that he'd like to do a D&C and he scheduled it for December 7. After seeing the films of the sonogram, he said that he'd like to remove her ovary and fallopian tubes. Now, this is where it gets a little confusing. He scheduled her for laproscopic surgery to remove the ovaries and fallopian tubes on the 17th of December. They will check the pathology in the OR and if needed, they'll also remove her uterus. For some reason, however they can't do that laproscopically and it might require abdominal surgery.
I'd like to get more infomration. First of all, why did he initially want to do a D&C? Also, if needed, why can't he do a hyterectomy laproscopically? I'd like her to get a second opinion.
I got the name of a gynecologist oncologist from Dr. Schuster at NY Hospital. Mom got all of her films and reports and brought them to his office. His secretary then presented her case to him and then called and said they'd see her but not until the 28th. OK, now what?? Does she have the surgery on the 17th or wait and see this other guy on the 28th? Also, she's really, really anxious to get down to Florida. Her health, of course, has to come first, but I'm afraid that in her eagerness to travel south, she's going to do the fastest thing and not necessarily the best thing.
OK, so that's where we are. Obviiously a sticky predicament. I'm going to try to get more information from the docs and from various friends and I welcome those of you to please chime in if you've something that might help.
Thank you again for you checking in on us. I appreciate all of you good wishes and prayers. Believe in Miracles!
She went for the sonogram and histogram. The sonogram went fine but the histogram turned out to be quite a fiasco. They tried to do it and she was in excruciating pain and they weren't successful. They told her that they'd try again, and she just said "no way" and got up and left.
The gynecologist oncologist had gotten in touch with her and said that he'd like to do a D&C and he scheduled it for December 7. After seeing the films of the sonogram, he said that he'd like to remove her ovary and fallopian tubes. Now, this is where it gets a little confusing. He scheduled her for laproscopic surgery to remove the ovaries and fallopian tubes on the 17th of December. They will check the pathology in the OR and if needed, they'll also remove her uterus. For some reason, however they can't do that laproscopically and it might require abdominal surgery.
I'd like to get more infomration. First of all, why did he initially want to do a D&C? Also, if needed, why can't he do a hyterectomy laproscopically? I'd like her to get a second opinion.
I got the name of a gynecologist oncologist from Dr. Schuster at NY Hospital. Mom got all of her films and reports and brought them to his office. His secretary then presented her case to him and then called and said they'd see her but not until the 28th. OK, now what?? Does she have the surgery on the 17th or wait and see this other guy on the 28th? Also, she's really, really anxious to get down to Florida. Her health, of course, has to come first, but I'm afraid that in her eagerness to travel south, she's going to do the fastest thing and not necessarily the best thing.
OK, so that's where we are. Obviiously a sticky predicament. I'm going to try to get more information from the docs and from various friends and I welcome those of you to please chime in if you've something that might help.
Thank you again for you checking in on us. I appreciate all of you good wishes and prayers. Believe in Miracles!
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