Good morning. I didn't get much sleep last night so I'm feeling a little tired this moring. Unfortunately, they gave me my steroids very late last night and I'm sure that's why I couldn't sleep, even WITH the Trazadone.
After disconecting me from the IVs yesterday for my shower, they never reconnected me. Instead, I've been on oral meds since then. So far, so good. I just can't believe how many pills and capsules I'm taking. I'm taking Tacrolimus and both steroids, Norvasc & Hydralazine for HBP (from the Tacro & steroids), Nexium and Actigall, Valtrex, Voriconozole...and those are just the ones I can think of. Oh, yeah, also insulin for my blood sugar which is increased from the steroids.
I'm going to get one unit of blood transfused today and maybe platelets, too. I haven't seen the platelet count yet. The downside to getting transfusions is that they give me Benadryl with it and that knocks me out and makes me feel hung over all day.
I want to congratulate my donor/hero/brother Avram. I love you. I'm so proud of you! You're the best!!
And also my Mom...there are no words to describe how grateful I am. There is no better example of a mother than this woman. She's been living in my hospital room for almost 5 weeks. I can't imagine how difficult this must be for her but she's constantly upbeat, smiling, encouraging and supportive. I love you, Mom.
I'll update after I see the team. Thanks again to all of your for all the good thoughts & wishes & prayers.
UPDATE: I'm currently getting a unit of blood. Afterward, I'll get a unit of platelets and then some Pentamidine prohylaxis anti-pneumonia.
Can't you at least pretend that there's something to thank me for?
ReplyDeleteLove,
The Little Loser Sister
There's so much to thank you for that I'll need a day dedicated to only you. I'll start compiling the list so that when I post it, it'll be complete.
ReplyDeleteI love you.
xoxo
L
Lee,
ReplyDeleteI'm sorry that you didn't sleep so well last night, but thankful that they took you off of your IV's, that's one step closer to coming home.
I want to tell you that last night I went to a shiur at Aish. It was one of Chavsie's teachers from seminary who had a huge impact on Chavsie's life, so I was very excited to go and meet her, and even my mom and Amy came with Chavsie and I. Right before she started to speak the person who introduced her said "This shiur is sponsored by Illana and Keith Moskowitz and is dedicated to Illana's sister Leah Rivka bas Yehudis Chana, for a refuah shelama". I was not prepared for this and I just started crying, and of course so did my mom.
The shiur was amazing. I can see why this woman impacted Chavsie so much. After the shiur I turned around and there was Illana. It was so good to see her, get hugs and kisses, and she personally filled me in on all the good news. Your sister's face shines when she talks about you and gets even brighter when she speaks of Avrum. I see Illana all the time but there was something so special about seeing her last night at this shiur that was dedicated to you.
In regards to your mom, of course she's amazing, the apple never falls far from the tree. Great grandma was amazing, Grandma was amazing, your mom is amazing and you are amazing.
Can't wait for you to come home.
Love you.
Shelly
Hello Diva,
ReplyDeleteI wish I could give you a big hug.
Princess
My dearest Leah,
ReplyDeleteI hate those steroids, "they could kill you" I had to go on two rounds one time and i was screaming like a lunatic. at everyone and everything. people, cars, trees, whatever was in my way. it made me nuts. so if your nerves go haywire - not too worry its the steroids.
i miss you and love you
oh so much.
git
I have the greatest friends. I love you guys. xoxo
ReplyDeletedearest Leah,
ReplyDeleteThere is a special love that people have for you. And your mom. And your brother. And your little loser sister. And the love continues to grow.
Refuah Shelaima.
Love,
Susie
Leah - I promise the drugs will taper. I felt like a drug store when I came home, but I am now down to only a few. They did put me back on the tacrolimus today since they thought that my mouth sores were more likely GVHD related. He said I could be on this anywhere from 4 weeks to 40 weeks. It just depends. Anyway, this too shall pass, and I still have no regrets. My counts were outstanding (hgb was 14.2, platelets were 208, wbc was good too but I can't remember.) Anyway, I'll take the mouth sores over the alternative any day. They are slowly getting better. Keep us posted and stay positive. Love ya lots.
ReplyDeleteMarsha
Hi Leah,
ReplyDeleteYou are all the most amazing people! There is nothing greater than having a family that just
keeps giving to each other in any way they can.
Its so great to hear that you are feeling well and can give us all so many details!
May this be the last time you have to give to each other in a hospital situation.
Have a good Shabbos , hope you will keep feeling better minute by minute.
Ilana you know that i think there is no one like you !!
Love,
Zeldie
Hello Ms. Moonie...
ReplyDeleteSorry to hear you did not sleep well last night.....with all those meds why can't they give you something good to knock you out at night?? That is some list of drugs you take...none of which I'd like to sample, by the way. You must be popping pills all day long now. Any news on when you might be going home?? I have my uniform all ready. Miss you so much and I can't wait to see you. Love to mom xoxoxoxo
ms. sunny
Hi Leah,
ReplyDeleteYou must be feeling better as your column keeps getting longer.I am taking 3 of the meds that you are getting.
Get well soon
Gary/Randie