Happy Mothers Day

First, I want to wish a Happy Mothers Day and happy everyday to all of you wonderful Moms out there. I had a wonderful day. David and I went to see 'A Behanding in Spokane', a Broadway show starring one of my very, very favorites, Christopher Walken. It was really wonderful, in spite of the fact that the weather was very UN-Mother's Day-like. It was pretty cold and very windy. I'm glad that I didn't plan to barbeque. After the show, we came home and we went out to dinner with my children, Jake's girlfriend Yasmine, Illana and Keith and their girls. It was nothing fancy but really, really nice. All in all, a very nice day.

Now for the health update... I saw Dr. Schuster on Friday. Luckily (or maybe not so luckily) the sores that had been bothering me on my legs were no longer inflamed and my ankles which had been swollen were no longer swollen. I still had some skin irritations and fatigue and pain in my muscles and joints. Thank God my blood tests were all normal. He said that it seems to him like a chronic gvh (graft vs. host) flare and he put me back on 20mg of Prednisone and Nexium to prevent stomach problems. He wants to see me in two weeks and hopefully, at that time I'll be feeling better and we can begin weaning off the Prednisone. I hope it goes as planned because I'd like to spend as little time on the Prednisone as possible.

I took my first dose yesterday morning and my second this morning. I think I am seeing an improvement already. I think I am starting to feel a little less "out of it" and, although I'm still achy, my joints and muscles seem to be less painful.

I hope you're all doing well, enjoying springtime and spending time with people you love. As always, I thank you for checking in and for your continued thoughts, prayers and good wishes. Believe in Miracles.

Laid Up Again (sigh)

I'm not feeling too well today. My skin is bothering me and I'm very achy. Also, my stomach is bothering me. Friday night I slept from 12:30am until 10:00am. Then I slept another 3 hours during the day Saturday. I should have figured that there's something brewing. Hopefully it's just a virus or something. I'm spending the day in bed and hoping to wake up feeling better tomorrow.

I'll keep you up to date. Thanks again for all your good wishes. Believe in Miracles.

UPDATE 5/5: Did lots of online research of my assortment of symptoms. Always a risky venture. I think I'm having some kind of gvd-induced autoimmune reaction from coming off of all the meds. I went to see Dr. Freidman, my internist on Monday. He drew blood and sent me for a bilateral venous doppler to rule out any DVT. I've got pain in swelling in both legs but I'm pretty sure that it'll be negative. Anyway, I think that if it were positive they'd have gotten in touch with me by now. I'm waiting to hear the results of the blood work. I spoke to Dr. Schuster and he wants to see me on Friday. I'm feeling pretty rotten, very, very tired, achy and swollen, assorted skin rashes, etc. Not a pretty picture.

I'm impatient for the results and want to get to the bottom of this asap so that we can treat it and move on. I had been feeling so well and had been walking every day and really, really enjoying it. I'm trying not to get too frustrated and will keep you up to date on the situation.

Thanks again for everything.