Tuesday Morning

I saw the doctor yesterday. My count were ok. My hemaglobin is a little low (8.7) and so he wants me to have a CBC locally next week to see if I may need some blood before my next regular appointment in 2 weeks. My platelet count is 99 and my WBCs are good. We don't have the bone marrow biopsy report yet, but what we do know is that my marrow is 100% Avram's!

I've had a purple splotchy rash on my chest and on one shoulder. I showed it to him two weeks ago and he didn't think much of it. I showed it to him again yesterday and I guess the fact that it's increasing made an impression. He sent me for a dermatologic consult. The dermatologist did a biopsy. Hopefully, it's nothing but I should have results by next week. I also have to go see the dermatologist again on Tuesday for suture removal. (Never a dull moment).

At my last visit two weeks ago, we reduced the evening dose of the Prograf (Tacrolimus) by half. As of today, I reduced the morning dose by half, as well. I'm a little worried about the possibility of GVHD flare-ups. I'll just continue to keep my eyes open for any changes.

Rachel and I had a really nice time last week. We each had a massage and a facial and then we watched the NBA Finals at Michael Jordan's 23 SportsCafe at Mohegan Sun. Rachel really enjoyed that. It was a good time.

Overall, I've been feeling well, thank God. I've been trying to stay active, trying to ride my bicycle daily. Yesterday didn't happen because I was in my Benadryl haze, having received Pentamidine again. As soon as I'm completely off the Prograf, we can start taking me off all the other stuff. I can't even imagine not taking a handful of pills numerous times a day. It seems like my way of life. I wouldn't mind getting used to a different way, though.

Thank you for checking in. I hope everything is going well in your world. Where would I be without your support? Thank you so much for your prayers. Believe in Miracles!