I know I haven't posted in a while. Thank God (B"H) I'm doing well and there's really not much to report. My eyes are still pretty bad but we're working on it. I saw Dr. Schuster yesterday. My HGB, which was 8.7 two weeks ago, is now 9.7 on it's own, going up without a transfusion. That's amazing! The eye doctor suggested trying new drops. I'm giving it a try but I'm not too hopeful. Dr. Schuster said that maybe photopheresis will help. I'd love to NOT have to resort to that but we'll just have to wait and see.
I'm down to 1/4 the amount of Prograf (Tacrolimus) that I had been on. He also reduced the amount of Norvasc by 1/2, so hopefully the swelling it causes will diminish.
Tomorrow is David and my 25th wedding anniversary. We're going to spend a few days away together. I don't expect to post again here for a couple of weeks, maybe ... after my next appointment. At least, I hope not. I'd love to continue uneventfully and boringly.
Thanks to those of you still checking in. And for your continued prayers and good wishes. Believe in Miracles! They're happening all around us all, every minute of every day!
Leah
ReplyDeleteIt is very nice to read such a good report. You and David deserve a wonderful anniversary away from it all! Enjoy.
We will all be checking in so post when you fell like it.
Good Shabbos and 25th Happy Anniversary.
Sandye and Martino
Leah,
ReplyDeleteI am so happy for you and David. Jim and I just celebrated 17 years in May, and mom and dad today are celebrating 41! I pray you continue to do well, and that your counts continue to go up on their own. I think you are on the rise now. Photopheresis may not be so bad - I will let you know after my first treatment next week. Love and hugs coming your way.
Marsha
hey ma,
ReplyDeletehappy anniversary!!!, (sorry I'm a little late).
just checking in, glad to hear your progressing, and I wanted to send a reminder, call/text me if you need something, I'm a good fill in while rachies away at camp.
much love, keep feelin good!
Bel
Happy Anniversary Salama :-). I'm glad to hear that things seem to be improving. All my best.
ReplyDeleteBrian
Thanks all for your wishes.
ReplyDeleteSandye, are you still in the baking business?? Email me your phone number, I think I will prove to be an excellent customer!
Bel, I know you're there for me, Babe. We're here for you, too. Don't be a stranger. xoxo
Brian, soooo nice to hear from you. Thanks for thinking of your favorite lunch meat! :)
Marsha, I love you, Sweetie and I'm praying for you. Good luck on the 9th. I'll try to be online so that we can chat during your photopheresis. (((((((((hugs)))))))))))
Leah, I heard about your illness via the Lazar's, who are in Israel now. I wish you a Refuah Shlemah. Seems like you're on the mend and I wish you the best.
ReplyDeleteHope you had a happy anniversary.
Terry Hirsch
Chashmonaim