I went back to the hospital on Tuesday and got 2 units of blood. It was a real hassle because Rachel had to drive me there and the timing wasn't ideal for her school schedule and then Jacob picked me us up (me & Mom) and he was busy working on a paper for school. And neither of them had working AC in their cars in 95-degree heat. Well, whatever, it's done.
I always expect to feel stronger right after a transfusion, but it usually takes a couple of days for me to feel a real difference. Yesterday was the first day I was able to get myself together and run some errands. Today I did some cooking. But both days, I'm pretty wiped out by the early afternoon. I think that I expected to be feeling stronger by now but I'm trying to be patient and rest when I need it. It's been just over 5 months since the transplant. At around 6 months, they're going to start weaning me off some of the meds.
I'm due for another bone marrow biopsy toward the end of May. I dread these. Some people have no problem with them but I find them to be EXTREMELY painful. I don't understand why they can't use some kind of sedation, like they use for a colonoscopy. I have to remember to ask about that.
My eyes are really bothering me alot. The puffiness and constant running makes it difficult to focus without repeatedly blinking to clear them. They eye doctor called it Chemosis -- inflammation of the conjunctiva. He gave me drops which I used for a week. When I went back to see him, we agreed that the drops didn't do anything at all (except cost me $50 copay). Dr. Schuster said that it's GVHD and that he sees it all the time. (Although I could swear that he told me that there was nothing wrong with my eyes). I hope that there's something that can be done for it.
Besides these few little things, I'm moving in the right direction and looking forward to feeling better and stronger. I have a lot of love and support from my family and friends. I thank you all for all the good wishes and prayers. Have a good Shabbat and a wonderful weekend. Believe in Miracles!
SHAVOA TOV!
ReplyDeleteHope you had a good Shabbos, and that this week you will continue getting stronger and stronger.
Chavie had a very rough day, on friday they moved her to the rehab. My Tziril stayed with her, they took her off all the iv before they moved her and this morning she woke up dehydrated,and in alot of pain. She isnt allowed to drink anything and only eat a small amount of purre'd food, because they cut muscle around her esophogus and the whole area is still swollen (all this info is from tziril our student nurse)
Just patience and slowly slowly she will heal, who better than you can we all learn from.
No news with my Leah she is still shlepping along!
My best to everyone and Shavoa tov!
Love,
Zeldie