Wow. I didn't realize that so much time had passed since I last posted. Sorry.
Today is 5 months since I received my brother's stem cells. Happy 5 month birthday to me!
Monday's appointment went well, thank God. My WBC and PLT counts were terrific, but my HGB was only 9.1. I have an appointment scheduled for this Monday and they're assuming I'll need blood again. I'm a little confused/concerned about this. I was under the impression that I'd be finished with blood transfusions by now -- that the platelets are the last to come up. I had intended to discuss it with the doc at my last appointment but they had given me 50mg. of Benadryl and Pentamidine and I was really out of it. I don't even remember speaking to him and I slept in the car all the way home, where I fell right into bed and kept on sleepin'.
Since my transplant, I've been having trouble with my eyes constantly running, occasionally blurry, gloppy, etc. I went to the eye doctor on Tuesday. He said that my conjunctiva and my lids are swollen and gave me drops and wants to see me again next week. I've been using the drops for 3 days - 4x/day and I don't see any difference yet. I think it's from the meds. He said he didn't know. I'll give it a week, I guess.
On Wednesday, Mom, Illana and I went to the cemetery to visit my Dad and Grandma and the rest of the family there. Afterward, we went to a couple of outlet stores nearby. I think that it may have been too much for me because yesterday and today I'm really fatigued. Of course, it may just be that I need blood, too. Who knows?
Anyway, I did a little bit of cooking this morning. We're going to Illana and Keith for the Sabbat meals and I just made a couple of side dishes. I'm going to rest now.
Thanks for checking in and for all of your good wishes and prayers. Please forgive me for letting so much time pass. I wish you all a Good Shabbat, a wonderful weekend and only good things. Believe in Miracles!
Leah - glad to hear you are doing o.k. The fatigue will pass - I promise. My eyes are really goopy too, which is why they are sending me to an ENT. The CT scan showed one of my sets of sinuses are really clogged, and it had nothing to do with my eyes at all. Keep using the drops but if they don't work, seek other avenues. I am on levaquin now for mine. Just a suggestion. Have a happy weekend and many blessings your way.
ReplyDeleteLove and hugs,
Marsha
Hi,
ReplyDeleteSo glad to hear from you!
I arrived yesterday morning, and afew hours later, we got the good news that Leiba had her baby girl, Baruch Hashem! We were all in Mount Sinai to visit her, and today mother and baby are home and doing well b"h. We are now waiting for the last of the bunch, and that is my Leah!
I hope you will have a restfull Shabbos, and enjoy the good weather in good health.
My warmest wishes to your Mom and to Ilana and Keith.
Good Shabbos!
Love,
Zeldie
Dear Leah,
ReplyDeleteWanted to wish you a Shabbat Shalom! You had a busy week, no wonder you're sooo tired. That's why we have Shabbat, to give us the ability to rest up. And yeah! It's going to be sunny. I am so tired of these cold, rainy days that make a person feel so achy. So enjoy the weekend, enjoy your family, and enjoy your own cooking.
Special regards to your Mom, hubby, and kids. I speak to Ilana all the time, albeit on the message tape, but eventually she calls back.
Love,Doba and crew
Doba
I've been checking the blog daily but have had such a busy couple of weeks, first with pesach and then getting back to normal, that I haven't even had much time to think, muchless write.
ReplyDeleteI hope that you had a restful Shabbos after such a busy week. The weather was really nice today so we spent alot of time outside. Tomorrow is supposed to be even nicer. I hope that you are getting alot of r and r.
Send love to everyone from me. I hope to get myself over to you sometime this week. I really want to come visit.
Love you.
Shelly
Dear Leah;
ReplyDeleteJust back after 21 days in Israel wit NO internet connection. Am happy to see that things are looking up. When I read your entries in a stream, I see many more steps forward than backward. Happy to hear you had a wonderful Pesach. Hope your strength comes back faster.
Rivki Berger