OK OK OK! Too many people are not happy with me for not updating my blog more often. I asked the question "Should I update even when I've got nothing to say?" to which the answer was a resounding "YES!". So, please forgive me for not posting since Tuesday. I was actually planning on updating yesterday after my appointment at the hospital, but I came home and slept.
Yesterday's appointment went well, Thank God. I was scheduled to have a pulmonary function test (PFT) but when I got there I told them that I wasn't really feeling up to it. Since Wednesday, I'd been very fatigued. My hemoglobin was 8.0 which explained the way I was feeling. So, they've rescheduled my PFT and gave me two units of blood which always starts with a couple of Tylenol and Benadryl. The Benadryl really knocks me out and so, when I got home I just kinda passed out for a couple of hours.
I'm feeling better now, a lot less fatigued. They further reduced the Prednisone to 10mg. daily. I've finished my course of Levaquin -- which was the oral antibiotic I was taking. But they increased my Hydralazine which I'm taking for hypertension (a side effect of the Prograf -- the immuno-suppresant). I'm still checking my glucose regularly and injecting myself with insulin 3x daily.
I'm still doing my physical therapy whenever possible. (I skipped a day or two because of soreness or fatigue). But there's definitely marked improvement! It's much easier for me to get in and out of a chair and up and down stairs, although my left leg still needs more strengthening than my right. It's definitely coming along and I'm pleased with the results.
I'm starting the think about preparing for Passover -- part of me is looking forward to it and the part of me is dreading it. It's going to be a lot of work and I don't know how much I'll be able to do. I'm just going to do as much as I can do.
Again, I want to thank God and I want to thank you all for following along with me. I know I'm one of the luckiest people in the world! Between my brother -- my "perfect match", my sister -- my other "perfect match" - my mom and the rest of my family and all of you who are praying for me and the best Doctors and my Dad and Grandma who are watching over me and keeping me safe, I am truly Blessed. How can you NOT believe in miracles???
Hi Leah, I also been checking the blog everyday to get an update. As one your angels we need to hear the uneventful things so we know our prayers are working. By the sound of things it's working. B'H"!!!!I'm so glad that you are doing better on a daily basis. Pesach is one of my favorite holidays, and you know what I say that the miracle of Pesach is. Start by making a list and try to accomplish a little at a time, if you're not able to then delegate. I'm sure everyone will be more than willing to help. If not no soup for them. Love Always, Buford xxx000xxx P.S. Rachel looked really cute for Purim. Say hi to everyone and send my love
ReplyDeleteYes, please continue to update. Even though we speak on the phone, I don't necessarily ask about the details, usually just to say hi. But I do want to know all of the milestones and this is the best way, without keeping you one the phone too long, which I know is like your favorite thing, not!!
ReplyDeleteIf you need some help for Pesach I would be happy to help you out. I am really looking forward to Pesach, I hope it is quiet and uneventful. My Moshe decided not to come home for Pesach because he wants to be in Israel for the Shalosh Regalim, so boo hoo on that. But my other kids will all be home so it should be nice.
You definitely have all the best people on your side and the best angels up in heaven so I know that you will be fine.
Love you.
Shelly
P.S. You all looked so cute in your Purim pics, and I love the cowboy hat look. You really made it work.
Leah, my dear BFF - it is always so good to hear from you and how you are doing. I am glad you got transfused and have a little more energy now. I can't wait until I get my prednisone lowered a little. I go back on Tuesday and I am hoping they will lower it then. I am also hoping to convince them to get me off the Prograf and switch to Cellcept. I have been on both before, and the Cellcept has a lot fewer side effects for me. I don't get jittery, no high blood pressure or racing heart. It just doesn't make me feel as yucky. Anyway, we'll see if he will go along with it. Who knows, maybe it will be better at clearing up the mouth sores too. Anyway, enough about me. I am so excited for you and your progress. Keep the smile and keep working on the PT. You sound like you are coming along so well. Love and hugs and many prayers your way!
ReplyDeleteMarsha
glad to see you in person and back on line-keeps us informed and gives us all chizuk and emunah--we will continue davening for you to get stronger everyday
ReplyDeletebig hugs from the levys
just say "i'm fine, nothing new"
ReplyDeletethat's what i did when i was in iraq. people would worry if they didn't hear from me for days.
e horwitz
fairfax, va
always great to hear from you, the more uneventful the better, keep it as boring as possible. So nice that you were able to really celebrate Purim and looking forward to Pesach too, whatever you do enjoy the preparation, physical and spiritual, it should bring you a complete redemption! Always thinking of you, Jenny
ReplyDelete