So this is what 100 days post-transplant feels like. Not too different from 98 or 99, actually. Just kidding around. I didn't expect a magical 100 to start feeling differently. I did, however go to Costco today. As you may or may not recall, the last time I went to Costco (also a Wednesday, I might add) I ended up going back into the hospital that very night. This morning, I asked Illana to take me to Costco and she didn't want me to go. She thought it would be bad luck or something like that. But I really did need to go and get some things and today it was not as frigid out as it has been for the last few days, so it seemed like a good idea to me. I did wear latex gloves the entire time so that I never actually touched the handle on the cart. And I did wash thoroughly as soon as I got home. And we really didn't spend too much time there, it was a pretty quick shopping. I only had a couple of things that needed to be brought into the house right away and everything else is still in the car awaiting arrival of other family members.
As expected, I was pretty exhausted when I got home (still not sleeping well). So I took a nap for about 45 minutes (gotta remember to shut off the phone ringer next time). When I got up I flushed my central line and did my exercises and rode the stationary bike. David will change my dressing when he gets home later tonight.
I have an appointment at the hospital at 9AM tomorrow. They've ordered 2 units of blood and 2 packs of platelets but I'm hoping I don't need them. I won't know until we get the CBC results.
Another thing...I've been injecting myself with insulin since my hospital discharge. I'm not diabetic but diabetes is a side effect of the Prograf I'm taking. So I check my glucose level before each meal and at bedtime and almost always needs insulin before each meal. Side effects stink. At my last visit, Dr. Schuster added another HBP med, Vasotec, because my pressure is still high. I'm now taking Norvasc, Hydralazine, and Vasotec for HBP. Do I normally have High Blood Pressure?? No! It's also a side effect of Prograf. My blurred vision (can't drive yet) is from yet another medication and so is my big round moon face and numerous chins. Yeah, that's my new thing...side effects stink!!!
OK, sorry for the little rant. Thank God, I'm feeling well enough to rant and shop at Costco and exercise, etc. I'm grateful for every little step I take. Hopefully I'll get a good report tomorrow and I'll update when I get home. Thanks for being there for me.
Hi Leah, Happy 100th Anniversary!!! Shopping is always a good way to celebrate. I'm glad that you were careful and protected yourself. you have come a long way baby and keep up the good work. I hope your visit at the hospital is uneventful. I think you look fine. Don't fret how your outside looks just know that your inner spirit is what keeps me as your friend. B'H" that you are well enough to complain. You're entitled. Love always Buford xxx000xxx
ReplyDeleteLeah,
ReplyDeleteYou sound so much more upbeat its like you have the power to raise us all.
Keep up the march forward.
Love,
Cindy and Jack
Hi Leah,
ReplyDeleteI am back on your side of the ocean, i am here im Monsey at my daughter leah's house. 100 days ago when all this started i was here in monsey too. I am sooo happy to hear that things are moving in the right direction and that bli ayin hara you are feeling better and better.
We will all keep davening for you from wherever we are, be it Florida, Long Island, Monsey or Yerushlayim, the only thing we all want is for you to keep up all the good spirits and keep letting us know about all your improvments.
Hello to Judy in Florida, and hi to your little sister!
Love,
Zeldie
Dear Leah; Love the complaining !!!! It is only when things start to seem normal do we allow ourselves to complain. So many meds, so many side effects. How wonderful is modern medicine. Keep reclaiming your life !!
ReplyDeleteSleep well;
Rivki Berger
Leah - my favorite is the medication that you hear about on tv that says one side effect is compulsive gambling???? Who thinks this stuff up - and why do they do it??? Anyway, just thought it was funny. Please feel to rant as much as you want. It helps those of us that have been through it feel normal!!! I too have the Michelin Man look. I only have one chin, but if my cheeks get any wider, they are going to have to widen the doorways in my home. I get neck cramps if I lay on my side because my cheeks prop my head up too much! Again, just being silly. Hope you are feeling better and that tomorrow goes well for you. Keep us posted, and don't overdo.
ReplyDeleteLove ya.
Marsha
HI Leah- hope the hospital visit went ok today, i dont know what i was so busy with this week but i just blogged on to see how u were doing and never wrote anything, as my mom said she is here this week staying with me it is the BEST thing in the world i wish she can stay longer and live near me but those are the breaks of life and its alwasy so hard when a mother leaves i am not looking foward at all- she is leaving tuesday night. I am so happy you are feeling better and u are going shopping just remember to take it easy and not over do it.
ReplyDeleteI am sure you are all into the purim spirit and u are busy with that some what.
Chava my aunt was busy in the kitchen all day she is having all my cousins for shabbos and her daughter leiba and family came in yesterday for her to give birth here after pessach so she is busy with that but she told me to send best regards she is thinking about it and will blog on monday when she is back in the office.
Have a great great shabbos waiting to hear what happend in the hospital.
Love Leah Berg