Hi. Sorry I haven't updated in a while. I've been feeling down in the dumps -- spending a little time wallowing in self-pity. It seems that although I've been eager to wean off of the Prednisone, it's the Prednisone that was giving me energy and, it would seem, a false sense of well-being. I'm down to 5mg. daily and I've been feeling pretty miserable. Tomorrow will be 4 months since my transplant and I'm frustrated with how limited I am.
At my last hospital visit last Thursday, I didn't need any blood products but I did get my Pentamidine and Benadryl and spent the entire day sleeping. Friday I woke up feeling miserable and sorry for myself and spent the day weeping. I haven't even been doing my PT.
But today the therapist came and so it was unavoidable. I'm glad I did it, though. It forced me to do something.
Meanwhile, I'm going to try to snap outta this funk I'm in, try to find the positive attitude that I seem to have misplaced. Thanks for hanging in with me.
Think positive! You can do it! Even when you don't want to do it, you need to walk and do your other exercises. Except for the days you get your Pentamadine, you should push yourself to walk.
ReplyDeleteBy the way, I HATE prednisone! However, for you it is a necessary evil. Look at every reduction in this med as a great benefit for you.
Edward C Horwitz
Fairfax,VA
Dearest Leah!
ReplyDeleteThanks for posting, I was getting somewhat nervous!
I'm so glad to see you are a normal human being, just like one of us. In life there are ups and downs. This might be a relatively small blip to recovery, but its normal. I can't even imagine how hard it must be to regain the strength you used to have. As a P.T. I can honestly say give it your all, its worth it! Besides, being a Jewish woman its a very normal time for the blues, with Pesach around the corner, so much to do, in so little time.
Its been 4 months since the transplant, and wow look how far you've come its a true miracle. with no two ways about it!
Every time i think about it it just overwhelms me to see in our day and age a true miracle unfold right before my eyes (screen).
Keep up the good work your almost there!
Love,
Tziril Yuman
Leah - hang in there. I am down to 5 mg a day now and feeling more cranky than blue. That stuff is nasty. Just know that your system will start stabilizing within a week or so of coming completely off it, and you will be making your own steroids again. I know you can stay positive, and know that you will be up in spirits again soon. We all love you lots and we are sending you lots of good thoughts and prayers.
ReplyDeleteLove ya,
Marsha
Leah.
ReplyDeleteYou are "allowed" to feel like crap..and sometimes just feeling sorry for yourself helps.. so.. go right ahead and feel sorry for yourself.. THEN.. get up and get moving!!!!!!!!!!
I know it sucks.. but.. I know YOU..and you are the best!!
LOVE AND KISSES..now get up and walk
xoxoxo A&B from the FDR
Oh Leah Leah Leah my dear friend.. I knew when I didn't see an update on the blog something was up. It gets to a point where your just sick the whole process and of course your frustrated and blue who wouldn't be. If it isn't the physical part toying with oneself it is your emotions. I'm sure as your medications are increased or decreased it will effect you physically or mentally and if not both. So it's ok to hide under the blankets for a little while. Sometimes the body adjusts without hitch, but sometimes you have to kick back. So get back on the Seussie and ride 'em cowgirl. I love you and keep on believing. LH&K xxx000xxx Buford YeeHaa!
ReplyDeleteyou are amazing! you are incredibly active and the fact that we read about you cooking, cleaning and knitting. I have see you out and about the neighborhood even driving on your own is a testament to how well you are doing (bli ayin hara) B"H that you want to do more but give yourself some time and you will feel stronger and stronger. try not to push off the PT because that will increase your strength and muscle tone which will enable you to do more (which it sounds like is your goal and should be--i would be more worried if you wanted to be a couch potato)
ReplyDeleteMost of all I am glad to see that you are 'well' enough to kvetch :)
We all continue to daven for a refuah sheleima(asap)
cfl
Thank G-d you posted. You almost made it necessary for me to make you speak on the phone. I know how much you love the phone!!
ReplyDeleteI think that each stage you go through in your recovery requires a new adjustment, almost a new normal. You have been able to more than rise to each challenge and I'm sure you'll get through this one with a little time. The imporant thing is to give yourself a break. You are amazing and are doing amazing, but you're allowed to have a pity party every now and then. Don't beat yourself up for it just push through it. And next time you spend the day weepy please call me, there's always Bed Bath and Beyond to cheer a girl up.
Hope mom is doing okay. Send her my love.
Love ya,
Shelly
Dearest Leah,
ReplyDeleteI feel like a jerk!!!! So sorry I haven't been tuned in by writing you not that I'm not tuned in with the update on whats doing!! Life just pulls me in so many directions!!!
We all have our times that we dont understand things and don't know why we have to go through all the tests that HASHEM gives us. You have been a role model to all of us at your BITACHON and I know that you will snap right back, it's not easy but you have shown us so much so just put a smile on your face like you have and help all of us move on with you!!!
Tonight is a rough one for all of us it's a year since Shlomie is gone and we are all going to my sister Dvorah's house for a meal and a Siyum! We decided all the young couples are in Lakewood and alot of our extended family is also there! Monsey is too hard for us!!!
Keep up your spirits we all love and DAVEN for you!!
Love, Chava