My appointment at the hospital went very well, Thank God. Since discontinuing the Valcyte, my CBC numbers have begun to rebound. (WBC=3.3 HGB=10.0 PLT=45). I didn't need any transfusions at all. I'm feeling pretty well and, except for the muscle weakness which makes it difficult for me to walk or to go from sitting to standing, can't complain. I got a prescription for physical therapy. I'll call and make an appointment later. They discontinued my evening dose of Prednisone (10mg). I'm hoping that this further reduction in the Prednisone will not only help with the muscle weakness, swollen ankles and moonface, but maybe it'll help me sleep and cut down on the appetite, too . . . still hungry all the time.
David drove me in and left at around 11 to get to work. Illana picked me up. My vision has been a little blurry so I'm not driving right now. Maybe that will clear up with the reduction of Prednisone, too. Hope so.
I didn't get much sleep last night and, anticipating that I'd need platelets, they gave me a Benadryl, so I'm kinda groggy right now. I think I'm going to take a little nap. Thank you all for your good wishes and prayers. They mean more than words can say. I hope you're all well and safe.
Wow - your counts look amazing. Your HGB is almost in normal range now. How excited you must have been to get that report. I pray that all continues to go up and that you will not need another transfusion. Once mine got above 10, although it did drop from time to time at first, it never got low enough to need another transfusion. I will pray the same for you, but don't worry if it does drop a little. Take care and rest well.
ReplyDeleteMarsha
Leah!
ReplyDeleteThat is great news! your numbers seem to be proving what you actually feel!
Yesterday my aunt Chava and i really wanted to come see you, i was really looking forward to it! But she got a slight cold so we decided against it, we will call and make arrangements some other time.
In the mean time keep up the good work!
Tziril Yurman
Leah, That great news! I hope the muscle weakness and the blurry vision will dissipate soon. Did mom arrive in Fla safely? As you know I will be in AZ. I don't know if I will access to a computer so I will miss you! I'll bring back something from Sedona. I heard the red rock has mystical powers. Be well and keep smiling. Love Always, Beth XXXOOOXXX
ReplyDeleteYay!! What a great report!! I hope that you continue feeling stronger every day and that things will get easier for you.
ReplyDeleteIf you need or want to go out and don't want to drive, call me.
Love you.
Shelly
hi Moonie....
ReplyDeleteSo happy to hear that you got such a good report at the hospital today...keep up the good work!! When do you have to go back again?
Call me if you need anything...thinking of you endlessly...
sunny
Hi Leah.......Just wanted to say hi.....I left you a message on your phone awhile ago .I read your blog and see your feeling a little better . I'm always asking about you to everyone that I see.......Just wanted you to know I'm always thinking of you...Hope to speak to you soon.......All my love..Michele
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