Hi. I just got back from the hospital with good news. My CMV level is low enough that I can discontinue the Valcyte for now. If you've been following along, you know that the CMV was really on my mind and I couldn't wait to stop taking the Valcyte because it was suppressing my blood counts. So, this is indeed good news!
They also got the results of the pathology reports from last week's colonoscopy. It showed no evidence of GvHD. Also good news! Which, in turn, leads to a small reduction in the amount of prednisone I'm taking. ALSO good news!
I got 1 bag of platelets and a unit of blood and I was home by 2PM. David took me today because I was nervous to drive because I'm still too shaky and my vision was a little blurry but hopefully, with the reduction in the prednisone, I'll begin to feel some improvements. (Hopefully)
I Thank God that I got such good reports today. I so appreciate those of you praying for me and sending me good thoughts and wishes. I know that my Father and my Grandmother are helping me from wherever it is they are. I hope all of you are healthy, warm and safe. Believe in Miracles.
I am so happy that you had such a good day at the hospital and that all your reports were positive. I hope that you will feel better and stronger from now on.
ReplyDeleteKnowing your dad and grandmother like I did, I am positive that they are causing quite a ruckus up there to ensure that you are 100% healthy. With a combo like the two of them, I know that you will be okay.
Keep positive and patient. We're still davening. Call me when you're up for coffee or a trip to anywhere.
Love you.
Shelly
That is great news!
ReplyDeleteMay the good news continue to come like this. Hang in there your almost there!
Shabbat Shalom!
Tziril Yurman
Just keep up the good work. Remember that when you start getting discouraged, there is usually good news around the corner and that the bad stuff will pass. It never seemed to pass as quickly as I wanted to, and sometimes it felt as if I would take 3 steps forward and 2 back, but you have to remember that it is at least 1 step of progress. I hope and pray that you will have fewer steps back in the future, and that you will soon be off of the prednisone, and free from transfusions. Have they told you when they will stop transfusing the platelets? I think they stopped mine as long as they stayed above 20. Now they are at about 180 and still climbing. HGB I know is more of a personal thing and how it makes you feel. My HGB wasn't transfused as long as it stayed above 8, but some people need it more around 10 to feel good. Take care and keep us posted. Stay positive.
ReplyDeleteLove and hugs,
Marsha
Leah,
ReplyDeleteare you up for soup? (shabbat)
please let me know, I will call you to check.
I can drive, albeit, poorly, but i am willing whenever and i can always find something to occupy me in NYC.
feel good.
catch you later.
g
Leah, Thank G-d for answering our prayers for you to have good news today. I'm sure that uplifted your spirit. I'm sorry you're not able to drive but at least I know that Mr. Maggoo wasn't on the road today. As Marsha said you will be doing the two step. All my love Beth XXXOOOXXX
ReplyDeleteYour patience paid off!! Good news...Hooray:)
ReplyDeleteGlad your feeling better, Patty
I've been away during Yeshiva break visiting the warm parts of the middle America (St. Louis, to be exact) where the low was 5 degrees. Dovid and hus family live there. It's still amazing that u can keep us informed, and it's so good to hear your progress. Keep your spirits up!
ReplyDeleteBest wishes from all - Alvin
good news and good shabbos
ReplyDeleterandie and gary