I haven't posted here in over 7 months. I've been caught in a vicious cycle between chronic GVHD (graft vs. host disease) and Prednisone. Every time I try to wean off the Prednisone, the GVHD flares and I've got to go back on it. Luckily, there's a relatively new treatment for GVHD called Extracorporeal Photopheresis or Photochemotheraphy. On Friday, I had a central line inserted and I'll be starting the treatment on Monday. I'll be going to Stony Brook University Medical Center for the photopheresis twice a week for the first few weeks and then, the schedule changes as we progress.
I'm very hopeful about this and I'm really ready to start feeling well again. I thank you for checking in and appreciate your prayers and good wishes.
I'll keep you posted.
Believe in Miracles!
Leah
Just thinking of you. We hope you feel better! gale b
ReplyDeleteI love u lou :)
ReplyDeletestay well!
ReplyDeleteE Horwitz
Efrat
My thoughts and prayers are with you Leah.
ReplyDeleteBrian Silverman
I had heard something and finally found this BLOG address. I hope you are doing well. Stony Brook is one heck of a schlep. You are on my Mishabarach list!!!!
ReplyDeleteLove, Ceil
Thank you guys so much. I wasn't sure if anyone was still "out there." Wishing you all the best. Shabbat Shalom. xoxo L
ReplyDelete