My cold/bronchitis is improving, too. Yesterday I really started feeling better. Just in time for a formal dinner at which my sister and her husband were being honored! (See photo) It was a wonderful time and I felt good. And I was very, very proud of them. Mom flew up on Thursday and will be returning to Florida tomorrow.
I saw Dr. Schuster on Friday. It was a very positive visit. First of all, he said that my lungs sounded clear. That was a relief. Secondly, he discontinued my Prednisone completely. Wow! I've been on that stuff for so long, I can't believe it. Also, I can now eat raw fruits and veggies. I've been sooooo careful for so long I just couldn't wait to go out to a restaurant and order a salad! He also reduced the dosage of one of the other meds. So, I'm really started to taper off.
I asked about my vaccinations...like which ones I'd need to get and when would I get them, etc. He explained that I should actually have the immunizations from my donor (Avram). At the two-year mark, we check and see if I have the titres and, if necessary, have whatever boosters I may need. Maybe none. Interesting and surprising.
Of course we spoke about the fact that I was left high and dry and felt abandoned when I was feeling so sick over the past couple of weeks. He did apologize and explained that while he's changing locations/offices, etc., during this time of transition, there are bound to be some glitches and the phone situation is one of them. He also said that if and when I feel I need to see a doctor, I should probably go to my primary care physician. Unless it's specifically Bone Marrow Transplant related, there's no reason I need to go to see him. Until now, everything went through him. I was not permitted to take any medications with aspirin or ibuprofen. But now, he said I could just go to my PCP. I guess he's pretty much done with me. I'll see him in another month at which time he'll further reduce the meds. Hopefully, this will be a quick and painless process.
On other fronts, everything is pretty good, thank God. I'm leaving to Florida tomorrow with my Mom. I'll be staying with her for a couple of days and then heading down to Miami Beach to prepare for Passover. Am I looking forward to this??? Yes and No. It's going to be a lot of work and I didn't really want to do a lot of work this year. But I'm glad that we'll be together...most of us, anyway. Avram will be working in Arizona so his family won't be with us this year. They will be missed.
Thanks again for checking in and for your continued thoughts, prayers and good wishes. Believe in Miracles!
Leah, You look FANTASTIC!!!!!! Wow!!! Its great to see you with your family!
ReplyDeleteThanks for the steady incoming updates, I was so happy to read about the new (old) life you are starting!
Though I must say that I am a little concerned about all the work you are about to start in your preparations for Pesach! I know it can be hard once you start, but try as much as you can to take it easy.
Happy cooking, cleaning and whatever else you will be doing!
Thinking about you always!!!!!
Love, Tziril Yurman
Dear Tziril,
ReplyDeleteThank you so much! It's always so wonderful to hear from you and just to know that you're thinking of me. I'm writing from Miami Beach. I've spent the last two days running around like a chicken without a head. It's now 8:30pm and I'm about to turn in for the night...exhausted. I think that the bulk of the running and schlepping is done and it should be less crazy from this point on.
If I don't speak to you before Pesach, I want to wish you and your family a chag kasher v'sameach m'od! Enjoy and don't work too hard.
Love, Leah