All OK. Enjoying life a bit.

Last Monday 2/8 I hopped on a plane and headed down to Florida and surpised Mom with an impromptu visit. It was really wonderful. I stayed for week and returned on the 15th early in the morning, giving me enough time to get myself together and attend a wedding on the night of the 15th -- which was also wonderful.

Thank God Mom's doing great. She's loving her new place and has met tons of new friends. She's busy practically 'round the clock. We had a really great time together, went down to Miami and checked out some rental apartments for Passover, went to the Hard Rock Casino in Hollywood, ate out at great restaurants, went to knitting stores, etc. It was really great.

I've been feeling good. Most of the aches & pains and rashes that I had from the Prednisone reduction have abated...just in time to reduce my dose again! As of tomorrow, I'll be taking 2.5 mg/WEEKLY (down from 2.5 mg/2x week). I'm hoping that I won't have any more reactions, but I'm prepared for it if I do.

I'm planning on going down to Miami for a month on 3/15, returning on 4/15. I'm looking forward to it, but not to all of the work. Passover sometimes seems like more work than I can deal with. But if I go early enough and start preparing enough in advance, I think it'll be more manageable. The most important thing is that we'll all be together (except for Avram, who is going to be working in Arizona).

Other than that, all is OK. Rachel and Jacob are working hard at their studies and are both expected to graduate in May!! David's been working hard (too hard) and is definitely looking forward to some vacation time in the sun.

Thank you for checking in on us and for your good thoughts and prayers. Wishing you a Happy Purim. Believe in Miracles!

Long Time No See

It's been quite a while since I last posted. That's good news. Thank God we're doing well.

Mom is feeling great and is enjoying her life in her new place in Florida. Her social calendar is so full that she barely has time to sleep. Good for her! She's having a great time.

Illana and her family are in Israel. I miss her terribly when she's not here. She's due back tomorrow.

Avram and family are good. We've been talking about Passover and how we'd all like to be together. Hopefully, we'll be able to work that out.

Rachel and I flew down to Florida for a week and a half. We spent some time with Mom and the rest in Miami Beach. It was real nice. David and Jacob flew down to meet us and spent 4 days there and then we all flew home together. Actually, Jacob left the day before we did. We spent some time at the Hard Rock Hotel & Casino in Hollywood. What fun! We actually walked away with our money and then some!

I saw Dr. Schuster yesterday. My counts are very good. We reduced my Prednisone a bit further. I'm now down to 2.5 mg. twice a week. I'm to do that for 3 weeks and then go down to once a week. I'm due to see him again on March 12. Amazingly, he's no longer at New York Presbyterian Hospital! He's now at Stonybrook University Hospital where he's setting up a BMT Unit. He's got a satellite office nearby and that's where I'll be seeing him. Stonybrook is just too far away.

I think that's it for now. You're pretty much up to date. As always, your prayers and good wishes are greatly appreciated. Thank you for being there. Believe in Miracles!

New Years Eve

Well, Mom saw the doctor on Monday. Thank God she got a good report and the go-ahead for travel. Her car was picked up and Monday afternoon and she flew down to Ft. Lauderdale on Wednesday afternoon to spend her first night in her new apartment in Century Village in Deerfield Beach. I suspect it will take a few nights to get used to her new surroundings in order to get a good nights sleep. But she is surrounded by friends who really care about her and I know she'll be ok.

Other than that, everything is status quo. Tonight is New Years Eve and David and I are going to a party. Thank you Shana & David for inviting us. We're really looking forward to it.

I'm feeling well, thank God. Small rash on my hand, still. I'm going to see Dr. Schuster on Tuesday. I don't know whether or not he'll want to reduce my Prednisone yet. Maybe he'll want to wait for this rash to clear up. Either way, I just hope I don't have to INCREASE the dose. I'd really love to be finished with it. I know...Patience.

I want to wish you all a happy & healthy new year. Personally, this past one was kinda rough for me so I'm looking forward to good times, good health. Thank you all for keeping up with me on this sometimes bumpy ride and for your continued prayers and good wishes. Let's hope that this new year brings us and those we love all good things. Believe in Miracles!

Finally Florida Bound!

Well, Mom got the go-ahead from her doctor this morning at her post-op follow-up visit. Her car will be shipped this afternoon and she is going to be flying down on Wednesday. I'm disappointed that our road trip has been cancelled but I understand how anxious she is to get down there. Hopefully, I'll go down and visit in a few weeks.

I've been doing pretty good. I still have a rash on my hands but other than that, it's ok. I've got another appointment to see Dr. Schuster on 1/5.

Thank God Mom had a good report and I'm feeling better and thank you all for your good wishes & prayers. Believe in Miracles!

Signs of Improvement

The last couple of days have brought some signs of improvement. I am less tired, fewer aches, the rash on my hand seems to be letting up and my eyes aren't bothering me as much. Thank God, maybe the worst is over?

I've been getting these little clear fluid-filled blisters in my mouth after I eat. They usually last for about 1/2 hour to an hour and then they disappear. I went to show them to an oral surgeon yesterday and he thinks that they're just from clogged salivary ducts, maybe from trauma, and that they'll probably just go away. The only thing I don't understand is why I'm getting them all of the sudden and why they are appearing on both sides of my mouth -- sometimes the right, sometimes the left, sometimes both simulatneously and sometimes not at all. I'll keep an eye on it an if it doesn't go away, I'll let Dr. Schuster know about it.

Mom has been feeling better and stronger. She's got a follow-up with the surgeon on 12/4, but she's trying to get in to see him sooner. I've got my next appointment on 12/5. If all goes well, we're hoping to go to Florida on 12/10.

Illana is still having trouble with her shoulder but she's been seeing a new doctor and has had some relief. She'd been going for physical therapy but saw no improvement. Tomorrow, she starts seeing an occupational theraist who specialiizes in the upper extremeties. We're optimistic & praying for her.

Thank God David and the kids are doing alright. Rachel's "friend" is here from L.A. Jacob will be going up to Connecticut to visit his "friend" this weekend. I've got relatives from Israel staying here for a couple of weeks. It's all good.

Thanks for checking in and for all of your thoughts, prayers and good wishes. Believe in Miracles!

Trying to De-Prednisone

Hi. I'm frustrated. I've been on Prednisone for months and months and we've been trying to wean me off. My first attempt was met with headaches, nausea and aches & pains. So we went back up on the dose and decided to try again in a little while.

The second attempt was met with really bad muscle and joint pain and fatigue and so we upped the dose and decided to try again in a little while.

Now we're trying again. I've got muscle and joint pain, though not as bad as last time, fatigue and I think I've got a rash on my hands and chest and neck. Also, my eyes, which have been so much better lately, have started bothering me again. I'm very eager to get off of the Prednisone but I just don't know how!

I'm not scheduled to see Dr. Schuster again for another three weeks. I guess I'm going to have to call him though to see if I should just "tough it out" or not. I'm leaning toward "toughing it out" as long as it doesn't pose any real danger.

I'm trying to be there for Mom but really all I want to do is stay in bed and watch old movies.

OK, so now I've vented a bit and you know what's going on. Will update again when there's news.

Thanks for being there. Believe in Miracles!

Mom's surgery update

Mom underwent laproscopic surgery yesterday at Lenox Hill Hospital. She had her ovaries and fallopian tubes removed and a D&C. Thank God the pathology was benign. She was in and out on the same day and is recuperating at my house.

David's working too hard and is exhausted. I guess we've got to plan a trip away, somewhere warm and relaxing.

My nephew Justin in Florida and his wife Noke were blessed with a new baby boy last week. He was over 10 lbs and his name is Julian. Welcome, Julian!

The kids are finishing up their semesters at Queens College and are now doing their papers and studying for finals.

Illana has been suffering terribly. She had shoulder surgery over a month ago but is not only still in pain, but is in more pain than ever. She's been going to physical therapy which doesn't seem to be working and just started acupuncture. Hopefully, she'll get some relief. We'll be praying for her.

Happy Chanukah to my Jewish friends, Merry & meaningful Christmas to my Christian friends and all the best of the season to those who fall into other categories. Thank you so much for your prayers and good wishes. Believe in miracles!

Sunday Update

As long as I'm in bed with a nasty cold, I'll update you on the situation with Mom.

She went for the sonogram and histogram. The sonogram went fine but the histogram turned out to be quite a fiasco. They tried to do it and she was in excruciating pain and they weren't successful. They told her that they'd try again, and she just said "no way" and got up and left.

The gynecologist oncologist had gotten in touch with her and said that he'd like to do a D&C and he scheduled it for December 7. After seeing the films of the sonogram, he said that he'd like to remove her ovary and fallopian tubes. Now, this is where it gets a little confusing. He scheduled her for laproscopic surgery to remove the ovaries and fallopian tubes on the 17th of December. They will check the pathology in the OR and if needed, they'll also remove her uterus. For some reason, however they can't do that laproscopically and it might require abdominal surgery.

I'd like to get more infomration. First of all, why did he initially want to do a D&C? Also, if needed, why can't he do a hyterectomy laproscopically? I'd like her to get a second opinion.

I got the name of a gynecologist oncologist from Dr. Schuster at NY Hospital. Mom got all of her films and reports and brought them to his office. His secretary then presented her case to him and then called and said they'd see her but not until the 28th. OK, now what?? Does she have the surgery on the 17th or wait and see this other guy on the 28th? Also, she's really, really anxious to get down to Florida. Her health, of course, has to come first, but I'm afraid that in her eagerness to travel south, she's going to do the fastest thing and not necessarily the best thing.

OK, so that's where we are. Obviiously a sticky predicament. I'm going to try to get more information from the docs and from various friends and I welcome those of you to please chime in if you've something that might help.

Thank you again for you checking in on us. I appreciate all of you good wishes and prayers. Believe in Miracles!

Speechless, for once

WOW! I'm on such a high. Last night, after watching the New York Jets lose yet again, I got dressed to meet some friends of ours for dinner. I haven't seen this couple in a while and I was looking forward to it. We were supposed to meet at the restaurant at 6:30. David and I walked in and the restaurant was very crowded. I was worried because I know that WE didn't make a reservation and I didn't know whether or not our friends did, either.

After fumbling for a few seconds at the door, I glanced around and saw my mother and my sister at a long table. OMG!! My brother, my daughter, my friends, my aunt & uncle (my son and gf Yasmine arrived a little later)! It was a surprise party for me to celebrate my one year New Birthday. Was I surprised? That's an understatement. But wait...it gets even better.

My sister tells me that she has Marsha on the phone from Florida. Anyone reading this is undoubtedly familiar with Marsha. Anyway, Illana tells me that Marsha's on the phone and is so sorry she wasn't able to be with us. She doesn't fly and she feels so bad that she's missing this celebration. I start to weep -- well, honestly -- I was kinda crying all along. So, I say that I love her and that, as per her suggestion, we're going to all go on a cruise together. So a second later...Marsha and her husband come out from behind the corner. OMG!!! I thought I would die of happiness! We just wrapped our arms around one another and cried and cried and cried, well, you get the idea.


Needless to say, it was the most fabulous evening. Once again, I want to thank those of you who have been praying for me and keeping me in their thoughts for the past year. To those of you who have commented on this blog and those of you who read the blog but chose not to comment or have written to me privately, you have helped me more than you can imagine. The tons of love and support that I got from you gave me the strength to keep on keepin' on.

Thank you! Thank you! Thank you!
Believe in Miracles!

More info on Mom

Mom saw the Gynecologic Oncologist on Monday. Thank God the sample he took came back negative. There's still a question on whether or not she needs a D&C and they want to get a closer look at one of her ovaries so she's scheduled for a histogram and a sonogram later this month. Hopefully, then we can put this all to rest.

Thankfully, she's feeling well and looking forward to getting down to Florida as soon as possible. In fact, she and my sister flew down yesterday evening to take a look at a couple of apartments. She's been thinking of moving to a different community. They'll be coming back this afternoon.

Besides that, I'm celebrating my new birthday. Last November 17th, I went into the hospital and after a week of chemo, had my tranplant on the 24th. Thanksgiving is REALLY a time for Thanks Giving. It's truly amazing and miraculous! I can't believe how far I've come and how lucky I am to have the brother/hero that I have and to be surrounded by such supportive family and friends.

Thank God I've been feeling pretty good. Although I'm still achey and fatigued from the Prednisone reduction. I'm down to 2.5mg twice a week. Hopefully, I'll be off it soon and able to get some of my energy back.

Thank you for checking in and for sticking by me and for all of your good thoughts and prayers. Believe in Miracles!

Update on Mom (without much info)

Mom went to see the Gynecologic Oncologist today. His name is Dr. Thomas Lallas and he's at Lenox Hill. He did an exam and tried to get a sample of endometrial tissue. He's not sure if he was 100% successful and won't know for about a week. At that time, IF he was able to obtain endometrial tissue, he'll be able to tell us whether or not it's benign. If it turns out that the tissue sample was NOT endometrial, he'll have to do a saline hysteroscopy. He thinks that it's unlikely that it's malignant but needs to rule it out. For now, we just wait. I think that Mom is less anxious about the situation since speaking to him. He seemed to reassure her.

We're very grateful that is appears to be pretty innocuous and are looking forward to getting a clean bill of health and taking to the road.

I will update as I get information.

Thanks for checking in and for your thoughts and prayers.
Mom's Hebrew name is Yehudis Chana bat Sara Rivka.

November 2

It's been a while since I've posted. Thank God I've been doing well for the most part. I'm still feeling tired but I think that that's a normal part of this process.

Mom has had some issues that need to be taken care of. She and I were planning on driving down to Florida in her car and then I was supposed to fly back home alone. She wanted to get all of her "doctoring" out of the way before heading down south. Unfortunately, something showed up on one of her sonograms and needed further investigating. After a CT and an MRI, she now has to see a gyn/onc. Obviously, we're praying that it's nothing bad, but we're checking it out. We had planned on leaving yesterday so we're just in a holding pattern right now.

Mom's making an appointment to see the doc asap. I'll keep you updated with any information.

Thanks for checking in and for your continued thoughts and prayers. Believe in Miracles!

Update

I saw the doctor on Monday. Thank God my numbers are ok. My blood pressure was too high and so he increased my Vasotec from 5mg to 10mg daily. I'm no longer taking Norvasc nor hydralazine. He reduced my Prednisone from 5mg to 2.5mg daily. He gave me the go-ahead to fly (wearing a mask) and said it's ok to go to theatres, shows, concerts, etc. I've been feeling pretty good and have started walking on the boardwalk -- not too far, but I'm enjoying it.

Mom is still staying with me and will probably be going back to her apartment on Sunday night or Monday morning, after the holidays. Right now she's with Illana and Nava in Lancaster, PA visiting the chocolate factory at Hershey, the Crayola factory and the Amish Country. They went yesterday and are expected back some time today.

We've been having some beautiful autumn weather. It's much more comfortable for me than the summer was. Since my transplant, I really haven't been able to tolerate the sun or the heat. Dr. Schuster said that it's normal and will take time. Walking on the boardwalk now is really a pleasure.

David will be going down to Florida on Monday to see the Jets play the Dolphins on Monday Night Football. I gotta admit that I'm a little jealous, especially now that I can fly. But he's going with his Dad and going to be spending time with his brother and the plans have already been made. I'm hoping to go down to Tampa when the Bucs play the Jets in December.

Everthing else is ok and I can't believe that it's been almost a year. I've come so far! I'm still somewhat immuno-compromised and I don't eat raw fruits or veggies (except at home after I scrub them), stay away from construction, soil, plants, etc. I still have some way to go. I'm so grateful to my friends and family and those who have been with me, praying for my recovery and sending good thoughts and wishes. Thank you so much. Believe in Miracles!!

HAPPY BIRTHDAY RACHEL!!!

Today is Rachel's 21st Birthday. My baby girl is 21. Unbelievable. I am so grateful and I thank God every day for her. She is truly such a blessing.

This morning, Illana called and said that I should tell Rachel not to leave to school yet because Illana wants to stop by and give her a birthday kiss. So Illana walks in, gives Rachel a kiss and then tells me that she has a surprise for me. In walks Mom!!! I couldn't believe it. She wasn't scheduled to return from Israel until the 5th of October. I was so happy. It's Rachel's birthday but, for sure, I got the best present. Mom's going to be staying here with us at our house because her apartment's being painted.

We went to Illana and Keith's for the first day of Rosh Hashanah and then we had 21 people here for the second day. I did a lot of cooking and was pretty tired but I was able to relax and enjoy. The weather was perfect and it was an amazingly pleasant day. I think everyone had a really nice time.

I had a pretty bad cold for a couple of days, but I'm much better now. Thank God I'm feeling well and so is Mom -- except for her knee. It's been hurting her and we're going to check it out. I'll keep you posted on that.

My next appointment at the hospital isn't until 10/5. We're getting close to my ONE YEAR ANNIVERSARY!! Unfortunately, that means lots of tests, including another Bone Marrow Biopsy (I think). They told me there'd by lots of tests, I'm just assuming that a BMB is one of them. Once again, I'm not looking forward to that and I'm going to insist on being "put out" for it. I'm not going to worry about it, either way.

Thank you again for following along. Thanks for all of your prayers and good wishes. Wishing all of my Jewish friends a happy, healthy & wondrous new year. Believe in Miracles!

Before Rosh Hashanah

Well, Mom is in Israel. She left last Monday. My cousin is getting married there next Monday. This is the first time I'm going to be missing one of my cousins weddings but I'm not allowed to fly yet. So, I'm sad because I really, REALLY miss my mother and because I'm missing my cousin Ayala's wedding. I'm grateful, though, that she was feeling well enough to go and that the doctor gave her the "green light."

I saw Dr. Schuster yesterday. Thank God my counts were good. He reduced my Prednisone to 5 mg./day and discontinued the Hydralazine. I had been taking the Hydralazine 4x a day, so it really makes a difference in my life. Now I'm only taking pills at breakfast and dinner (and bedtime if I need something to sleep). I'm still taking the Vasotec for my BP. I had called his office last week because my chest felt somewhat congested and I was starting to cough stuff up. To be on the safe side, they put me on antibiotics for 5 days. I finished the course on Monday and I've been feeling better, Thank God.

Oh, AND I fainted again when they drew my blood. I can't believe it. After all I've been through, blood tests make me faint?? It's a little embarassing, but there's nothing I can do about it, however hard I try to stop it from happening. It's very frustrating.

My next appointment is not until October 5 -- almost 3 weeks.

I've started doing yarnwork again. I finished a few projects that were already in progress. I finished a knitted baby blanket, a crocheted afghan and I'm almost done with a knitted sweater. I'd like to get these done before I start something new -- I know, out of character for me. I can only work for a short while before my eyes start to bother me, but I put drops in and then I can work for another short while.

Tomorrow I will start preparing for the holiday. I think that David and I and the kids will be having dinner here alone on Friday night. We'll probably all be at Illana and Keith's on Saturday and then everyone will come here on Sunday. I'm not looking forward to celebrating Rosh Hashanah without my Mom here. It's going to be difficult. She's not planning on coming home until after Yom Kippur but I don't think that I'm going to let her stay away that long. I just miss her so much! I'm going to call her tomorrow and ask her if she'd cut her trip a bit short. I mean, really!!

I think that you're pretty much up to day now. I want to wish you all a very happy and very healthy new year. Take notice of and appreciate the wonder all around you. Believe in Miracles!!

Labor Day Update

Mom saw Dr. Levine on Wednesday. The newer, better MRI didn't really show anything new but confirmed what he already suspected. He believes she had TRANSIENT GLOBAL AMNESIA. They don't really know what causes it but if you Google it, as I did, it does sound like she had a textbook case of it. We pray it was a one-time event and that it won't recur.

She has a CAVERNOUS ANGIOMA which may have been there her entire life...or not. Once again, nobody knows. He thinks that she should have another MRI in a year to see if there are any changes to it, but otherwise to leave it alone.

She also has a benign tumor on the 8th cranial nerve (Acoustic) also known as a VESTIBULAR SCHWANNOMA. Mom has been wearing hearing aids for a couple of years now, but the doctor said that her hearing loss is probably caused by this tumor and is not age-related. He wants her to see an Acoutical Tumor Specialist. Removing it might improve her hearing significantly. But it may be one of those brain surgeries in which they have to "crack your coconut", as he said. So, unless the tumor grows and she, God forbid starts having other symptoms, we're probably going to wait and see. We WILL make an appointment with the specialist, though.

Thank God, I've been feeling pretty well. I have been having headaches for the last week of so but I'm hoping that they're from the weather or the meds or whatever... I dunno. I'm still on 15mg. prednisone daily. I have an appointment at the hospital on Tuesday (tomorrow). I have a real fear of the Swine Flu now that it's getting cooler and the kids are back in school. I feel like I want to lock myself in my house until the spring. There's a bottle of hand sanitizer near the front door and we're all using it as soon as we enter the house. I'm also washing my hands A LOT. What's meant to be will be.

Thanks for thinking of me and for your prayers and good wishes. Believe in Miracles!!

Friday Afternoon

Mom ended up not seeing the neurologist on Tuesday. I saw Dr. Schuster at 9:00AM and was finished before 10. Mom's appointment was scheduled for 2:45. Instead of trying to "kill 4 hours," she decided that she'd rather see a neurologist at Mt. Sinai that she'd already met with my sister and with whom she's already discussed her case. He's also already seen her films of the CT and the MRI that were done at South Nassau. After seeing the tests, he said that he'd like her to have another MRI because the quality of the first one was very poor. Also, he'd like to compare the two. She called him and got a prescription for the new MRI and she went with Illana yesterday morning and had it done. She has an appointment scheduled with him on Wednesday.

As far as we know, it appears that what she had was Transient Global Amnesia, a form of TIA (Transient Ischemic Accident). If that is indeed the case -- if, in fact there was NO BLEED, as they initially thought -- then she can go back to her usual aspirin/day and drive again and get back to her usual routine. As of now, she's still staying here at my house and really hasn't been driving (I think she did once).
Hopefully, whatever it was is over and gone and will never recur. Thank God she's been feeling well and looks as beautiful as ever.

My visit with the Dr. went well, too. My numbers were good, Thank God.

Thank you for following and for caring and for your prayers and good thoughts. Have a wonderful weekend. Keep believing in miracles!!

Thursday Update

B"H Mom came home from the hospital on Tuesday afternoon and is staying here with me. She's feeling well and looking well, Thank God. Her EEG was unremarkable and we will be taking all of the test results with us when we see the neurologist at New York Hospital on Tuesday. She played Mah Jong yesterday and is having her hair done, "as we speak." Please keep her in your prayers -- Yehudis Chana bas Sara Rivka.

Thanks for checking in. Believe in Miracles!

Monday News

Ok,there are actually things to report. First and foremost, Mom is in the hospital. Saturday morning she had an "episode" which we and the doctors thought was a mild stroke. Normally, on Saturday mornings, she would be waking up in either my or Illana & Keith's house. This past weekend, however we all had dinner at Illana's and because Illana's air conditioning wasn't working, she walked home after dinner and was planning on coming back to Illana's for lunch on Saturday.

Saturday morning my telephone rang and it was Mom's Caller ID. David answered the phone and it was Mom and she was very, very confused. She didn't realize it was Saturday and she didn't remember eating at Illana's and didn't remember going home. It was very frightening. David and I rushed over there and called the ambulance. She was walking and talking normally and had no outward appearance of any problem whatsoever. She just kept asking the same questions over and over and didn't know the year or who the president was.

They took her by ambulance to the ER where she had a CT scan. They said that she had a very small bleed and by Saturday night she had her memory back. The only thing she didn't (and still doesn't) remember was the actual episode on Saturday morning.

Since then, she has had another CT scan, and MRI and an MRA. Today, the doctor said that it appears that there was no bleed at all. What they saw on the CT and initially thought was a bleed is actually a CAVERNOUS ANGIOMA. They said it's something she may have had her whole life and that it was not responsible for her symptoms. Now they're saying that she may have had a seizure. They've ordered an EEG and we're waiting for that now.

Thank God she's feeling well. She looks great. She's out of bed. She said that she feels fine. Still, there's no explanation for what happened and we hope that we'll be able to get some answers soon.

I have an appointment at NY Hospital tomorrow morning and I'm going to ask Dr. Schuster to recommend a Neurologist.

I saw Dr. Schuster last week and thank God my numbers were really good -- WBC 6.8, HGB 11.2, PLT 135. They gave me my Benadryl but about halfway through the Pentamidine I fainted again. Dr. Schuster said "No more Pentamidine." I'm sure we'll discuss it further tomorrow.

I'm still taking the Prednisone. In fact, he increased my dose back up to 20mg/day on Friday because I was feeling nauseous and headachy again. Actually, I'm still feeling a little nauseous and headachy, but it's on and off...just not constant. My eyes are pretty much the same as they've been.

I think that's it for now (it's enough!). Thanks for checking in. We all appreciate your thoughts and prayers. Mom's name is Yehudis Chana bas Sara Rivka. Believe in Miracles!

Thursday

I went back to the hospital on Tuesday for a visit with Dr. Schuster. Because of the previous week's "fiasco" he wanted to see me in one week, instead of the usual two. Thank God, all went well. My counts were better -- WBC 3.6, HGB 10.4, PLT 129. There was none of that silly fainting nonsense.

I have my regular appointment scheduled for next Tuesday when I will get my Benadryl/Pentamidine. Dr. Schuster reduced the dosage on the Prednisone from 20mg. to 15mg. daily. I'm still feeling tired, even though my HGB is in double digits. He said it's from the GvH.

My eyes are still driving me a little crazy and I have an appointment with the eye doctor this afternoon.

Thankfully, there's not much more to report. I can't believe I've passed the 8-month mark! I feel truly blessed and I know that I'm well on my way to a full recovery and to feeling well again. Thank you for sticking with me through it all and for your good wishes, thoughts and prayers. Believe in Miracles!!